Track change in pain intensity, symptoms, medication intake during an attack#1220

This topic has generated a great deal of discussion, so let’s focus on gathering your feedback and suggestions related specifically to tracking changes here.

Some of you have already provided valuable input through a survey, we got more than 1200 answers!!!! You are such a great community and I want to thank you very much for your contributions.
Your insights have been instrumental in our efforts to incorporate the evolution of attacks into a calendar feature for chronic migraine sufferers experiencing daily attacks. Our technicians are currently hard at work on this, so stay tuned for updates I will communicate on its availability and functionality when it is ready to launch.

For those who are not chronic, don’t worry! We’re still actively exploring the best approach to meet your needs. To better understand how we can provide the best solutions, I’ll soon be sharing a new questionnaire designed specifically for non-chronic migraine sufferers (those who don’t have daily attacks).

Let’s continue to collaborate on this journey together!
Your input is invaluable, thank you for sharing it!

Thank you Jenny, this is great. I look forward to the next questionnaire

The ability to track changes with time stamps during an attack would be helpful in both tracing the migraine itself and determining what treatments go well together.

Also, the ability to track not just the intensity of the migraine pain, but all the other symptoms, would be invaluable. Some of us who suffer from migraines find that the most debilitating symptom isn’t the pain, which may last a shorter time or reasons to medication which doesn’t help other symptoms. My fatigue, brain fog, eye pain, and light sensitivity are debilitating with every attack regardless of the intensity of the pain with each attack. Having the ability to long press a symptom and have a menu pop up that has an “intensity” option, which takes you to a separate page with a scale to select (which also has a time stamp ability) would allow us to track the progression of all symptoms to get a good picture of what is going on during an attack that may show a pattern.

Couldn’t agree more, Heather! Not being able to log the myriad symptoms, etc in real time rather than amalgamated under the one ‘attack’ is incredibly frustrating. I would love to be able to log the different symptoms, instensity and treatments tried as they are utilised to give a clearer picture of the arc the migraines take.

I agree with you. I find that the Health section is useful to record all treatments and comment on them with side effects, symptoms etc…
As per the symptoms fluctuation, I must say that the notes section and its timestamp is very useful.
Everything appears on the report for my doctor, including the Health notes.

Yes I agree, the time stamps is helpful but can be hard when in the middle of an attack to document thoroughly. I really like the function of showing where my pain is but would love to be able to enter another pain locator map when the pain moves or develops. Sometimes the pain is at different levels in different locations too- what if there was a way to combine the pain levels and locator map that turns it into a colored heat map?

I agree with all the above. And when you simply tell us “do it in the notes section”, it shows me you really don’t want to help. It’s incredibly difficult to type out all this stuff when you’re in the middle of an attack…I can’t always type correctly, and I don’t want to deal with it when in the middle of an attack. A time stamp on the symptoms, the pain intensity, the pain location would be immensity valuable.

I’d love the ability to track changes in where the pain is as well (my migraines usually start in my neck and then travel forward to my eyes). In addition, being able to have more specific pain locations on the map would be helpful